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Book Cover
Author Shagam, Janet Yagoda.

Title An unintended journey : a caregiver's guide to dementia / Janet Yagoda Shagam.

Publication Info. Amherst, New York : Prometheus Books, 2013.


Location Call No. Status
 PAS Central Library Non-Fiction, 3rd Floor    616.83 SHA    Available
 PAS Hastings Branch Non-Fiction    616.83 SHA    Available
Description 427 pages : illustrations ; 24 cm.
text rdacontent
unmediated rdamedia
volume rdacarrier
Bibliography Includes bibliographical references and index.
Contents An unintended journey -- What is happening? -- What could this be? -- Managing behavior, theirs and yours -- One day at a time -- Family dynamics -- When the little things are really the big things -- Finding the right care facility -- It's time -- Settling in -- Failing heath -- Dying -- Picking up the pieces, peeling back the layers -- Talking among friends.
Summary "According to the 2009 census, more than five million people living in the United States have Alzheimer's disease or some other form of dementia. Not reported in these statistics are the fifteen million family caregivers who, in total, contribute seventeen billion hours of unpaid care each year. This book addresses the needs and challenges faced by adult children and other family members who are scrambling to make sense of what is happening to themselves and the loved ones in their care. The author, an experienced medical and science writer known for her ability to clearly explain complex and emotionally sensitive topics, is also a former family caregiver herself. Using both personal narrative and well-researched, expert-verified content, she guides readers through the often-confusing and challenging world of dementia care. She carefully escorts caregivers through the basics of dementia as a brain disorder, its accompanying behaviors, the procedures used to diagnose and stage the disease, and the legal aspects of providing care for an adult who is no longer competent. She also covers topics not usually included in other books on dementia: family dynamics, caregiver burnout, elder abuse, incontinence, finances and paying for care, the challenges same-sex families face, and coping with the eventuality of death and estate management. Each chapter begins with a real-life vignette taken from the author's personal experience and concludes with "Frequently Asked Questions" and "Worksheets" sections. The FAQs tackle specific issues and situations that often make caregiving such a challenge. The worksheets are a tool to help readers organize, evaluate, and self-reflect. A glossary of terms, an appendix, and references for further reading give readers a command of the vocabulary clinicians use and access to valuable resources"-- Provided by publisher.
Subject Dementia -- Patients -- Family relationships.
Dementia -- Patients -- Home care -- Psychological aspects.
Caregivers -- Psychology.
ISBN 9781616147518 paperback
1616147512 paperback

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